{"id":12201,"date":"2018-06-09T18:18:00","date_gmt":"2018-06-10T01:18:00","guid":{"rendered":"https:\/\/library.consciencelaws.org\/?p=12201"},"modified":"2023-01-22T15:14:25","modified_gmt":"2023-01-22T23:14:25","slug":"access-to-aid-in-dying-in-the-united-states-shifting-the-debate-from-rights-to-justice","status":"publish","type":"post","link":"https:\/\/library.consciencelaws.org\/?p=12201","title":{"rendered":"Access to aid-in-dying in the United States: Shifting the debate from rights to justice"},"content":{"rendered":"\n<h4 class=\"wp-block-heading\">Mara Buchbinder<\/h4>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignleft size-full\"><img decoding=\"async\" src=\"https:\/\/library.consciencelaws.org\/wp-content\/uploads\/2023\/01\/amjournalpubhealth.jpg\" alt=\"American Journal of Public Health\" class=\"wp-image-12306\"\/><figcaption class=\"wp-element-caption\">American Journal of Public Health<\/figcaption><\/figure>\n<\/div>\n\n\n<p><strong>Author Summary<\/strong><br>Much of the literature on aid-in-dying (AID) has drawn heavily on rights-based ethical and legal frameworks that emphasize patients&#8217; rights of self-determination in end-of-life decision-making. Less attention has focused on how terminally ill people actually experience such putative rights once they are legally authorized. This analytic essay draws on findings from the Vermont Study on Aid-in-Dying, an ethnographic study of the implementation of AID in Vermont (2015-2017). First, I show that terminally ill people can face a range of barriers to accessing AID in permissive jurisdictions, and that access to AID is mediated by various inequalities endemic to US health care, as well as some that are unique to AID. I then build on these findings to examine the utility of the concept of justice for public health scholarship on AID. By integrating empirical, ethical, and policy analysis, I reframe rights-based frameworks that emphasize the role of individual choice and decision-making at the end of life. In doing so, I draw attention to health care justice as a neglected issue in public health perspectives on AID.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<p>Buchbinder M. <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC5944872\/pdf\/AJPH.2018.304352.pdf\">Access to aid-in-dying in the United States: Shifting the debate from rights to justice<\/a>. Am J Public Health. 2018;108(6):754-759. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>Mara Buchbinder Author SummaryMuch of the literature on aid-in-dying (AID) has drawn heavily on rights-based ethical and legal frameworks that emphasize patients&#8217; rights of self-determination in end-of-life decision-making. Less attention has focused on how terminally ill people actually experience such putative rights once they are legally authorized. This analytic essay draws on findings from the &hellip; <a href=\"https:\/\/library.consciencelaws.org\/?p=12201\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Access to aid-in-dying in the United States: Shifting the debate from rights to justice&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12,554,2,559],"tags":[289],"post_folder":[],"class_list":["post-12201","post","type-post","status-publish","format-standard","hentry","category-assisted-suicide","category-ethics","category-journal-article","category-law","tag-mara-buchbinder"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\r\n<title>Access to aid-in-dying in the United States: Shifting the debate from rights to justice - Protection of Conscience Project Library<\/title>\r\n<meta name=\"description\" content=\"Access to assisted suicide is unequal. 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